The Resource Rubber band girl : a mother's memoir, Jennifer Nielson, (electronic resource)

Rubber band girl : a mother's memoir, Jennifer Nielson, (electronic resource)

Label
Rubber band girl : a mother's memoir
Title
Rubber band girl
Title remainder
a mother's memoir
Statement of responsibility
Jennifer Nielson
Creator
Subject
Language
eng
Summary
Rubber Band Girl is a heartwarming story of a mother and daughter who never give up on life or on each other. Marfan Syndrome, or "Rubber Band Disease," as it is commonly called, has taken the lives of too many, too soon. A disease that attacks the ligaments of the body, it is associated with heart and vision problems, extreme flexibility of the joints, and, its most noticeable feature, excessive height. In this inspiring memoir, Jennifer Nielson recounts her journey as the mother of Hadley, a beautiful young girl with Marfan Syndrome. Together, they climb the mountains of life-threatening health problems and endless doctor visits. Together, they travel through the deep valleys of sorrow and loss. Together, they successfully manage Marfan's-and forge an unbreakable bond in the process
Member of
Cataloging source
N$T
Dewey number
616.773
Illustrations
illustrations
Index
no index present
LC call number
RC580.M37
Literary form
non fiction
Nature of contents
dictionaries
Series statement
Freading eBooks
Target audience
adult
Rubber band girl : a mother's memoir, Jennifer Nielson, (electronic resource)
Label
Rubber band girl : a mother's memoir, Jennifer Nielson, (electronic resource)
Link
https://epl.freading.com/ebooks/details/r:download/MDAxMDQxLTE2MTEyNjM0
Publication
Copyright
Related Contributor
Related Location
Related Agents
Related Authorities
Related Subjects
Related Items
Antecedent source
unknown
Carrier category
online resource
Carrier MARC source
rdacarrier
Color
multicolored
Content category
text
Content type MARC source
rdacontent
Control code
ocn853569417
http://library.link/vocab/cover_art
https://secure.syndetics.com/index.aspx?isbn=9781461934622/LC.GIF&client=780-496-1833&type=xw12&upc=&oclc=%28Sirsi%29%20f853569417
Dimensions
unknown
http://library.link/vocab/discovery_link
{'EPLMNA': 'https://epl.bibliocommons.com/item/show/1338923005'}
Extent
1 online resource (134 pages)
File format
unknown
Form of item
online
Isbn
9781461934622
Isbn Type
(electronic bk.)
Level of compression
unknown
Media category
computer
Media MARC source
rdamedia
Other physical details
illustrations.
Quality assurance targets
not applicable
Reformatting quality
unknown
Sound
unknown sound
Specific material designation
remote
System control number
  • (Sirsi) f853569417
  • (CaAE) f853569417

Library Locations

    • Stanley A. Milner (Downtown)Borrow it
      7 Sir Winston Churchill Square, Edmonton, AB, T5J 2V4, CA
      53.542897 -113.48975860000002
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